VIDEOS: EVENTS WE WON'T FORGET

 

VIDEOGRAPHY OF A DIVA

 

Being physically away from our families and friends made us look for alternatives to keep in contact with those we love. We have done video-conference various times so those close to us can watch Deedee live. We have also made some videos to record the diva's life. Here are some videos starring the Diva herself, and some video-messages that friends and family have sent her from Puerto Rico.

 

We have also created some videos featuring Deirdre's therapies: Respiratory Therapy, Physical Therapy, and Beckman's Oral Therapy. Through these we hope to share what we do and what we know with other families.

 

 

ONE, TWO, THREE: CAMERA PLEASE!

 

Diagnosed with Spinal Muscular Atrophy Type 1 (Werdning-Hoffman) in January 2008 at 5 months of age

 

FROM HERE TO HOLLYWOOD

Make a movie out of your own life, with your own ending!

 

"Life's like a movie, write your own ending

Keep believing, keep pretending.

We've done just what we set out

to do.

Thanks to the lovers,

the dreamers,

and you."

 

Kermit The Frog

The Muppet Movie

 

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