Diagnosed with Spinal Muscular Atrophy Type 1 (Werdning-Hoffman) in January 2008 at 5 years of age
"If some one loves a flower, of which just one single blossom grows in all the millions and millions of stars, it is enough to make him happy just to look at the stars. He can say to himself, 'Somewhere, my flower is there . . .'
Antoine de Saint-Exupèry
The Little Prince