SMA SUPPORT GROUPS
FOR PATIENTS & FAMILIES
SMA CHAT ROOMS
SMA Support Chat Highly Recommended!
SMASpace: A SMA Networking Site Highly Recommended!
SMA Families Group in Facebook Highly Recommended!
SUPPORT ORGANIZATIONS
MDA Muscular Dystrophy Association
IVUN International Ventilator Users Organization
LITTLEST HEROES PROJECT Voluntary photographers donate their services to capture unforgettable memories for kids with catastrophic illnesses.
SONGS OF LOVE Voluntary musicians donate their services to compose and cretae music about kids who battle catastrophic illnesses.
MARCH OF DIMES Fight for healthy babies.
MUMS Parent to Parent Matching
EQUIPMENT RESOURCES
EVERYTHING ABOUT SPINAL MUSCULAR ATROPHY
IMPORTANT BASIC DOCUMENTS THAT EVERYONE MUST HAVE
SMA Consensus of Standards of Care 2007
LET'S DESTROY THIS MONSTER!
DAILY CARE MANUAL FOR DEIRDRE MEDINA
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