TRATAMIENTOS PARA AME

E INVESTIGACIONES ACTUALES

 

TRATAMIENTOS

El AME no tiene cura. Actualmente hay varios proyectos cuya misión es obtener alguna forma de tratamiento y/o cura para esta enfermedad.

 

Proyecto Cura al AME:

Project CureSMA

 

Pruebas clínicas en Estados Unidos:

ClinicalTrials.gov

 

Blog de noticias sobre AME:

SMA Research News

 

 

NOTICIAS SOBRE INVESTIGACIONES

03.2010 CNS-targeted gene therapy improves survival and motor function in a mouse model of spinal muscular atrophy

 

02.2010 California Stem Cell and ALS Therapy Development Institute Extend Their Collaboration to Advance Potential Stem Cell Assisted Therapy for ALS

 

01.2010 First U.S. stem cells transplanted into spinal cord

 

01.2010 Stem cell institute shifts focus to clinical trials

 

US Stem Cell Funding Rules Finalized

 

SMA: PROJECT STEM CELL to NEURON

 

Stem Cells: Small Wonders

 

FSMA Funded Stem Cell Research

 

Stem Cel ls Suspended State Preserved By Key Step, Scientists Report

 

MDA: Neural Stem Cells Help SMA Mice

 

Stem cell therapy helps patients with multiple sclerosis, small study shows

 

12.2009 Scientists recreate nerve disease to study it

 

09.2008 College student has beaten the odds of her disability

 

07.2008 Researchers Discover Key Gene for Making Motor Neurons

 

04.2008 Researchers gather at AAN (American Academy of Neurology) meeting (check SMA section for some good news)

 

03.2008 Children with SEVERE SMA are Surviving Longer

 

03.2008 Gene ID'd for X-linked SMA

 

03.2008 Making the SWITCH Fiber optic switches opens the door to a whole new world of mobility and communication

 

03.2008 NIV Masks: Find the right one for you

 

03.2008 How to get your child's school to provide Assistive Technology and/or help with Learning Disabilities

 

05.2004 New Hope In SMA: Amid Ongoing Search for Drug Treatments, Clinical Testing of First Hits Begins

 

 

INFORMACIÓN SOBRE CÉLULAS MADRE "STEM CELLS"

Stem Cell Institute of New Jersey

 

Genetics Policy Institute

 

Coriell Institute for Medical Research

 

California Stem Cell

 

 

 

TODO SOBRE atrofia muscular espinal

 

DOCUMENTOS BÁSICOS IMPORTANTES EN PDF

(Estos son los originales, en inglés)

SMA Consensus of Standards of Care 2007

Care during a cold

SMA Choices

Cough Assist

SMA Nutrition Guidelines 2007

 

DESTRUYAMOS ese MONSTRUO

 

MANUAL DE CUIDADO DIARIO DE DEIRDRE MEDINA

 

SÍGUENOS